loss of appetite
Seizure medication: unfortunate side effects and ineffective control
I mentioned a while ago that we were starting Quincy on a new seizure medication. Her seizure control wasn’t as good as we’d liked and she doesn’t have much room left to move on her Keppra or her Depakote. So, we began the slow process of introducing a new medication. Unfortunately, this didn’t work as we had hoped. Initially the seizure control improved, although in our experience that is a pretty typical initial result for any new medication, but as we continued to increase her to a therapeutic level she began experiencing frustrating side effects. She began sleeping far too much, she completely lost her appetite and began refusing to eat, and we battled constant constipation. I believe the constipation was more a result of her being too lethargic for her body to even function properly.
So, we are now in the slow process of weaning her off this medication. It will take seven weeks to safely take her off this drug. We are three weeks into the process and we finally have our Quincy back. She is alert and happy, has a healthy appetite and her body is functioning regularly. So, looks like we made a good decision.
The only scary part is that as we wean her down and keep her other meds at their current level, we risk an increase in seizures. So far we haven’t had much trouble with this but we have to keep our fingers crossed.
I am off to Salt Lake City for two more days of vaccine safety meetings with the Center for Disease Control. I apologize for not writing more…I have been travelling quite a bit lately for this important work and when I’m home it seems I only have time to catch up with my family and my sleep before heading out again. Hopefully by mid-March my life will slow down a little.
